June 19 is Sickle Cell Awareness Day. A year ago today I wrote a blog post about sickle cell disease. This year I am doing the same. The difference is last year as I wrote I sat by T’s hospital bed. He was hospitalized with pain and inflammation. It was the second day of our third hospital stay.
I am thankful to God that we have not had an overnight trip to the hospital since. T. has been well, praise God! As we celebrate one year with no hospital stays, I do want to think of those who have not had such an uneventful year. My prayers are for comfort in pain, spiritual, emotional and financial relief. The illness of a child can pose a burden on a family in many ways.
Sickle cell has affected our lives greatly. I at times wonder how different life would be. Prior, we were a 2-income family and our schedules were rather hectic. We are still battling the hectic life, but I must say we are a lot less busy since the diagnosis (well, the kids and I are). Our eyes have been opened to the strain of a busy life and the health impact it could have on our family. I say this to say the changes haven’t all been bad.
This Summer, our days are relatively easy and simple. We stay indoor on extremely hot days. We take lots of walks and drink lots of water. We eat healthy most days, though the kids tend to unload ketchup on anything they’re eating.
We are OK. Life changed. Our habits changed. Our socio-economic status changed. My area of prominence shifted…but we are OK. We continue to see the faithfulness of the Lord in all of this.
And for this I am grateful.
We continue to hope and pray for a cure. To the naked eye, he is a typical 2-year old, active, loud, playful. He is a funny and sweet little boy. He just needs more rest, water and medicine than your average boy.
If your life has been impacted by a health crisis, sickle cell or else, I am sorry about your plight. I encourage you to trust God with it. His faithfulness is beyond anything I have ever experienced or could ever imagine. He will supply your needs. Be encouraged!